They call him the ‘Butterfly Boy’.
But his real given name is Jonathon. He’s just a kid, but he’s already past half of his life. According to doctors he will live to just 24 years old. He was born with with a rare genetic disease (ED) that causes his body to severely blister. As he gets older, they get bigger and deeper, and more chronic, which means that the wounds will never go away.
Please Jonathon’s story and positive outlook on life with family and friends!